528 Hertz

“You know that the universe vibrates at 528 Hz, right?”

This was only part of the first conversation I had with Neil*, who had just come on hospice and was living at home with with his mother. It was my initial assessment with him, and it was already off to an interesting start. When I arrived for our meeting time he wasn’t available. The neighbors in his apartment building who were sitting outside said that he had just gone out to the local Rite-Aid with his girlfriend. So I waited on the patio until he arrived.

Neil right off the bat struck me as an interesting guy. He was in his mid-50’s, and his long white hair, thin build, pale Hawaiian shirt and straw fedora made him look like a wandering beachcomber. He carried a portable oxygen concentrator, the only visible indicator of his end-stage lung cancer. “Hey man! Sorry I’m late. I had to go get my meds and some toothpaste.” He introduced me to his girlfriend who was with him and neighbors and then escorted me inside, chatting the whole time. Continue reading

Advertisements

NPR Show Discusses Hospice and “Comfort Care”, Advance Directives

Joshua Johnson, host of NPR’s 1A

The NPR show and podcast 1A recently held a discussion with former radio personality Diane Rehm and medical experts, prompted by the news that former First Lady Barbara Bush had chosen “comfort care” in the last days of her life. Continue reading

Countering Hospice Myths: A Response to John Neihof and the American Family Association

A recent article by Dr. John Neihof on the American Family Association website caught my attention recently. I find that I’m often at odds with the AFA, and try to counter some of their more off-base proclamations (the biblical mandate for border walls for example) in their comments section. It’s been a fool’s errand I think, and this fool has run his final errand with the AFA. Continue reading

Why We Get Complicated Grief Wrong

I recently switched positions in my company to help manage our bereavement services. Don’t worry – I’m still in the field as a chaplain as well (with a very limited caseload – something I asked for)! I had a great deal of experience working in bereavement in my prior company so this has been a good fit so far.

However this move has brought up something that has always bothered me. That is even though that the staff I work with on a daily basis has years of experience in hospice care we still struggle with measuring and even recognizing complicated grief and bereavement. Continue reading

Getting Your Foot in the Door: 8 Ways to reduce “declines” for chaplains

the chaplain makes his rounds

One issue that I see frequently coming across chaplain discussion boards is that many have increasing numbers of those declining chaplain support. One poster, a hospice chaplain in Georgia, said her declines went from 10% five years ago to about 35% now.

Many believe that the refusal of spiritual support is due to a decline in religiosity overall in our country and culture. That may be true, but I don’t think it accounts for the majority of declines. Even though the Pew Research Center found a nearly 8 point percentage drop in those professing Christianity between 2007 and 2014, about 70% of Americans still identify as a member of some Christian church or faith group. From my own experience I can say as that I have had many accepting of chaplain support who were atheist or agnostic, or believed in God but did not consider themselves religious.  And no these were not millennials, these were your typical elderly hospice patient. Continue reading

When All is Said and Done: Death and “Magic Words”

Your average hospice chaplain. Probably had 3 units of Level II CPE.

Recently I had a family whose mother was on hospice with us. When Isabel* had a sudden decline and became active her family gathered around the bedside and all started to say the things that families and caregivers – including hospice staff – feel that they need to say in order for the dying person to “let go”. They all said that they loved her and that they would be OK. They had out of town family come in and say good-bye in person and on the phone. They told her over and over again that it was OK for her to go. The priest gave last rites. This went on for well over a week.

Needless to say it was rough. The family came and went, said what they needed to say, and still Isabel seemed to hang on. There were a lot of thoughts and questions: “What haven’t we said? Is there someone that hasn’t said goodbye yet? Is she waiting to hear from someone? What are we missing? Why is she still here?

My best response was, “I don’t know.”

Continue reading

“Hope can harm dying patients”: F. Perry Wilson on Doctors, Families and Misplaced Hope

Our humanity, as well as our caring nature, often calls us to be sources of strength and encouragement to those who are in crisis. This is true of Doctors, Chaplains, Nurses – in fact the whole hospice team. We hate to be the ones delivering bad news, especially when we feel like the other needs comfort rather than reality when reality most likely is going to be awful.

F. Perry Wilson, MD, MS

Dr. F. Perry Wilson, in a video report on MedPageToday, reports on a recent study concerning what doctors and surrogates believed a terminal ventilator patient’s chances of survival to be. The study found major discrepancies between doctors and families, and while doctors were often more accurate in their assessment that knowledge was rarely transferred to the families in the study. Families were often too optimistic regarding chances of survival. There were several factors involved in this, including religious belief or hope for a miracle, the need to not “give up”, and even magical thinking (“If I circle 50% it might be true”).

The study and analysis reveal how medical clinicians and supporters, including Chaplains and Social Workers, can reframe “hope” to mean hope in a peaceful death rather than hope for a full recovery.

One piece of the puzzle that was not addressed was that this unwarranted optimism could easily be seen as part of the grieving process for families. While education about realistic expectations is certainly necessary and needed, resistance to this advice in favor of “hope” shouldn’t just be written off.  Denial, bargaining and magical thinking are part of the grieving process and may show that they are trying to wrestle with acceptance rather than avoid it.

 

Peter Singer, Blackmore and Weikart Discuss: Does Life Have Intrinsic Value?

Peter Singer, Richard Weikart, and Susan Blackmore

source: Premier Christian Radio

For those of us in hospice settings, the notion of “quality of life” is very important. There is disagreement however concerning what or who actually gives that life quality. This podcast from the UK program Unbelievable?  tackles both sides of the issue of what gives life value. Peter Singer and Susan Blackmore uphold the notion that life has no intrinsic value from a Creator, only from the value one derives from it, while Christian author Richard Weikart takes the opposite view. It’s a very good conversation with both sides taken seriously, and I was especially glad to hear from Peter Singer as his views are often shrouded in controversy. Click on the image above to be taken to the podcast page or click here. I hope you find it insightful.

Share your opinions below!

 

 

Crossing Divides: Can an Atheist be a Chaplain?

Can an Atheist be a chaplain?

It may seem like a ridiculous question, I know. However Great Britain recently named its first “Non-Religious Pastoral Carer” within its national health system. This sparked debate about whether or not it’s even possible for a non-religious person could technically be a “chaplain” given that the title itself has an obvious religious connotation.

While the argument is interesting, I don’t find it very helpful though. It becomes an argument about semantics and definitions. But frame the question this way and I think it gets interesting: Can someone of one faith provide spiritual support to another of a different faith, or of no faith at all? Put it that way and I think you are getting to a core question for those serving in Chaplaincy already, as well as those planning for ministry. Continue reading

Verbatim: Ms. F, “Maybe it’s not so bad”

(watch the video above before you read on: it’s funny, creative and has cute doggies)

I wanted to share my most recent verbatim which I’m also using for my certification. It’s in a bit of a different format and is definitely longer than most of my posts. Read on and I hope you benefit from it. You’ll catch why I included the video at the end of the paper. Continue reading