Hope

A recent article in PlainViews asked the question, “How can we as healthcare chaplains help our patients look further down the road with hope?”  This is a significant question, especially in the hospice setting, as so many see terminality as the cessation of hope.  There are still occasions where family members ask us not to mention the disease to the patient, or not to mention hospice at all, as doing so will cause the patient to “lose hope” and die in a pit of despair and sadness.  Sometimes this does happen, but from my experience it is very rare.

It is true that a terminal diagnosis often causes or represents a loss of hope for the patient and the family.  The future that was planned for seems lost.  There can be last grasps at miracles, medical or otherwise, in order to make things as they were before the diagnosis.  It’s not surprising that the loss of hope comes with so much grief.  The question remains of how we can help patients and families look forward “down the road” when the road seems to have run out over a cliff.

In these circumstances, the chaplain can help by reframing what hope is and what is hoped for.  One must first recognize those losses, including lost hope, and find meaning in them.  When the meaning of what was hoped for is understood, it may be possible to find other resources to maintain that meaning, or find new meaning out of the shards of what was lost.  For example, a family has just been told that their aging mother, who always wanted to reach her 101st birthday, probably won’t make it to her 95th.  While recognizing the loss of that goal and the hope associated with it, the chaplain may work to find out what that birthday meant to her and find ways to celebrate than meaning in the here-and-now.

New paths of hope can be forged as well which had never been considered before: the hope that one can die at home, mend a broken fence with a family member, to choose not to endure undesired treatments, to live as one wants rather than as expected.

The loss of hope is not permanent.  The chaplain, through use of active listening and reflection and meaning-making, can assist by offering paths and opportunities which perhaps had not been considered, and by honoring the paths that are taken.

On Advice

I get an e-journal on medical chaplaincy that usually gets a brief look-over when it ends up in my inbox.  While the articles are usually either clinically-minded or introspective, there has been an ongoing back-and-forth discussion on what exactly the practice of chaplaincy should look like.

Chaplains have a bit of a blind task at times in the medical world.  We are asked to provide spiritual care for someone who may not be able to understand us well or at all due to dementia.  We may have folks who are even unresponsive.  The question obviously arises as to how that happens.

The answer has been called by some “the art of presence” or the “practice of presence”.  The idea is that some cases do not require direct intervention or active participation, only the conscious presence of a caring individual.  This has numerous benefits in the hectic world of medicine, where nobody has time to simply sit and be with someone for even 30 minutes. 

The question arose in discussion though about whether or not the chaplain’s primary stance is one of passivity and witness.  Chaplains are often trained in models of therapy that involve active listening, reflection, and unconditional positive regard.  But are there situations and circumstances that require more direct intervention?  Should we correct erroneous attitudes?  Should we give advice when asked?  What if I’m wrong?  Then again, what if I’m right?

I have given advice and offered correction, but only after I feel that the other person has been fully heard and when they feel that I have fully heard them.  I’ve been in situations where I’m at the end of the rope and asked for advice and not gotten it.  It is frustrating to be answered with silence but also a time to recognize that answers aren’t easy.

On Funerals

People tend to think I have a sad job, and that somehow performing funerals is the worst part of my job.  The truth is that having done my share of funerals and weddings, I much prefer funerals.

First, the guests at funerals typically aren’t drunk when they arrive.

Second, the guests at funerals typically aren’t thinking of drinking during the service.  I’m sure some are, and honestly so have I, but at least it doesn’t show quite as much.

Third, people at funerals will listen to you as a minister.  I’ve performed weddings where it was clear that I was an add-on.  People give more consideration to the napkins than to the minister or the sermon when planning a wedding.  But at a funeral, people tend to listen.  People are hurt and when they’re hurt they’re open to what you have to say.  So what do you say at a funeral?

Sometimes it’s hard to write a message for a funeral, and sometimes it isn’t.  I always try to point to Jesus though.  There’s no real point in my glorifying a person at a funeral, and I’m not always comfortable even saying that this person is in heaven when I may not have known them for more than a week.

The point of the funeral message is to point to Christ.  Anything else is usually disingenuous.  Worse, you may have missed the opportunity to be an agent of grace in someone’s life.  I obviously don’t do an altar call (or casket call for that matter), but there is no better time to share God’s love than when someone is mourning.  Even the strongest Christian needs to hear God’s grace when a loved one dies, not how nice a person the deceased is.

What’s next for hospice?

The news of Washington’s attempt at health-care reform has been taken primarily negatively around here an by hospice in general. Apparently about $7 billion will be cut from hospice-directed spending and there will much more regulation as well.

It’s difficult to say how this will really affect hospice care. There will be lawsuits and hold-ups I’m sure, and I’d be willing to bet that how the law is implemented in the years to come will be quite different from the bill that passed. Still, it does make one wonder about who will survive such a big change.

Craziness

Craziness

One thing that you never expect from hospice work is the frantic pace of it.  The concerns of seeing new patients in a timely manner, responding to emergencies and distress calls, visiting ongoing patients regularly, and tending to families when loved ones die are a part of everyday life.   All of these can batter your emotions and sanity on a bad day, leaving you to feel as if the plates just aren’t going to spin anymore.  Couple these concerns with ongoing pressures to increase census, staff support, the filling out and filing of endless forms, not to mention the concerns of the home front and it’s no wonder that individuals in caring professions have high incidences of burnout. Continue reading