Why I’m a Chaplain – II: Connecticut Hospice

Last time I talked about how my dad’s illness and death helped guide me toward hospice. What I hadn’t mentioned was that he was never on hospice – we didn’t even have time to consider that. My first experience in hospice care came while I was in seminary at Yale Divinity, where for a time I volunteered at Connecticut Hospice.

This was my first experience with any kind of hospice. My responsibilities were pretty light – empty the garbage cans by the bedside, make sure the water pitchers were full. But it was quite an interesting experience and one that, along with many others, pointed me in the direction where I am headed now.  Continue reading

Why I’m a Chaplain – I: My Dad

I thought I’d start a series talking less about the practicalities of hospice and chaplaincy and share a bit about what got me to this place in life. Even these are going to be numbered don’t think of them being in any particular order.

So first is my dad.

I grew up in rural western Pennsylvania on a 50 acre farm with my three sisters, mom and dad. My dad, besides running the farm, worked in a sintering plant. The steel industry in the area was on the decline, and I remember my dad alternately being laid off, then working odd shift hours, then being laid off again and so on. But something significant happened when I was in about middle school: my dad was diagnosed with Acute Lymphocitic Leukemia (if I remember all that correctly). Initially this came as a huge blow to our family, but our doctor said that if you were going to get Leukemia this is the type to get. It was not itself fatal, and could be managed fairly well. Continue reading

Pastoral Care and Advanced Dementia

***update 5/7/20: I was recently forwarded an article noting how certain natural remedies, including tumeric, may have positive benefits for those suffering from Alzheimer’s disease and Parkinson’s disease. If you’re interested you can find it here. This is not an endorsement, just a passing along of information some may find beneficial.***

When I first started chaplaincy, I would walk out the door with bible in hand and a planned reading for the day for all my patients.

That lasted about two days.

The reason was not that I gave up or got lazy, but rather that I quickly found that the majority of the patients I saw didn’t benefit from it because they simply couldn’t understand what I was doing due to advanced dementia of some kind. Even if end-stage dementia was not their primary diagnosis, I’d say at least 2/3rds of the people I saw suffered from this. Many could communicate and talk with me, but lived in a world of their own. They would often misinterpret their environment, and in many cases couldn’t remember what I had just said to them a few minutes ago. Some were truly end stage, confined to a chair or to bed, nonverbal or nonsensical, and having no apparent understanding of what was going on around them. Organically, their brains were slowly dying, leaving them trapped in a world that I didn’t know how to enter.

That’s what makes dementia and Alzheimer’s Disease so tragic. A person can otherwise be relatively healthy, but as their brain deteriorates it can seem as if they are lost to us already. Continue reading

Clinical Pastoral Education isn’t just for Chaplains

Back in seminary I had the opportunity to do CPE at a local hospital in New Haven. It was a great facility and a prime opportunity – the slots fill up fast. But I didn’t take it because I planned on doing more traditional church ministry, not chaplaincy. While some of my classmates jumped at the opportunity to get CPE, others, like myself, said “why bother if I’m not going to need it?” Looking back I can see that I missed out on a great opportunity.

So do you need Clinical Pastoral Education if you’re planning on traditional ministry? Is it really only for hospital chaplains or navel gazers? Absolutely not.  Continue reading

Mixed Messages

Every so often you’ll come across a case that’s difficult because of competing messages and needs. For example I have one patient that had declined spiritual support for several months. He was always on the forefront of people’s minds though, because of the many needs he had. He had alienated his entire family and been through most of the assisted living homes in the area, burning his bridges in the process. He suffered from a great deal of depression and anxiety, never seemed satisfied or comfortable (even after massive doses of pain medication), and seemed to be always wanting to change things in his care plan – though nothing made a difference. He had declined chaplain services for months (he was Catholic) but the team thought that he would greatly benefit from support, if only to give him someone else to vent to other than the on-call staff. Continue reading

Religious positions on end of life care: BBC News

I picked up the following from the BBC while doing a bit of research in medical ethics:

End of life care: What do religions say?

Picture of a hospice worker with a patient

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With figures showing that many people around the world die painfully due to scarce access to morphine, the World Health Organization is calling for improvements to end of life care.

But even when pain medication is available, the end of someone’s life is often an immensely difficult moment for all concerned. So for those who believe, what guidance can religions offer in a person’s last moments?

At first glance the words ‘good’ and ‘death’ might not seem compatible, yet most of us will have reflected on how we would like to depart this world, if given the opportunity to choose.

While the proverbial scenario ‘at home, asleep’ might unfortunately not be attainable for everyone, it does give a sense of what the ‘ideal’ death might look like: peaceful, pain-free and dignified.

Such themes occur in religious discourse around the end of life too. Although there can be variations in how branches of the same faith view specific situations, there is one common thread: that life is sacred and should be preserved.

Rabbi Yehuda Pink, convener of the West Midlands Jewish Medical Ethics Forum, says that traditional Judaism gives life infinite value, as humans are created in the image of God. Therefore, an hour, a day or a week of life has as much value as a year or ten years.

The challenge, says Rabbi Pink, comes when we need to determine whether we are preserving life or prolonging dying.

“There is no obligation to prolong the dying process, quite the opposite,” he says. “We need to ensure that people don’t suffer pain, so palliative care serves a very important role in Jewish beliefs.”

Similarly, Christianity, Islam and Buddhism see looking after the ill as a core value. Dr Desmond Biddulph, president of the UK’s Buddhist Society, says that Buddhism’s First Noble Truth recognises that death is suffering but not unexpected. Buddhism teaches to accept death while still recognising that life is precious, but no particular advice is given in terms of end of life care.

Relieving pain

While healing miracles appear in the Abrahamic faiths, palliative care is generally not seen as giving up on God’s powers. Rabbi Pink explains that Judaism views medicine as a partnership with God, who has hidden within nature the ability to do many things: “Unveiling and unleashing the potential of medicine is actually a declaration of faith in God,” he says.

Faiths agree on the fact that a patient with an incurable illness does not have to undergo extensive suffering. Reverend Kevin Dunn, chaplain at the Christie NHS Foundation Trust, describes situations in which someone might negotiate the amount of pain relief they are administered, as they want to remain conscious and less sedated.

However, he says that pain does not have an intrinsic religious value in traditional Christianity: “Pain can be used by the person in a spiritual way, but pain does not equal close to God.”

‘Angels and prophecies’

The meaning attributed to suffering can differ from patient to patient. Dr Jonathan Koffman, lecturer in palliative care at King’s College London’s Cicely Saunders Institute, has researched the role of religion and spirituality at the end of life.

His observations of London’s Afro-Carribean communities show how religions have developed a very strong framework for “making sense of the inexplicable”.

Dr Koffman stresses the importance for doctors to communicate with their patients and to understand that a person’s beliefs, levels of religiosity and ways to respond to illness can change. For example, some patients may have prophetic visions – such as an angel – which, despite evidence to the contrary, convince them their conditions will improve. These visions, which are deeply rooted in the patient’s belief system, can affect their end of life medical decisions.

Moreover, some patients may interpret pain in a religious key: “Some may ascribe pain to being a test of their religious faith, or divine punishment,” he says. “And in some instances they may refuse [pain relief], because they have to bear that suffering.”

A similar view can be found among some Muslim faithful. Imam Yunus Dudhwala, head of chaplaincy at Barts Health NHS Trust, says this belief comes from a saying of the Prophet Mohammed which hints at difficulty and pain as a way to expiate sins. Hence, some patients may be reluctant to take pain relief.

Intentions and results

Another reason some might refuse strong pain medication, explains Imam Dudhwala, is that in some cases it may hasten death. This is one of the many ethical issues surrounding end of life: that medicines used for a positive purpose, relieving pain, might have a negative effect: the death of the patient. The doctrine of double effect is often cited in these cases to support one argument over another.

Rabbi Pink says in these cases effects and their likelihood should be looked at carefully: “If the administration of the pain relief would have such severe effect, like to almost certainly kill the person, that would clearly be forbidden. For example, euthanasia is certainly not allowed in Jewish terms.”

Intentions have a very important role in the Buddhist approach too. Dr Biddulph explains that karma is created through selfish actions. Discussing hypothetical scenarios of individuals having to take medical decisions for a patient, he says not taking into account the best interest of everyone involved in the situation might affect karma.

Humane decisions

Withdrawing hydration and nutrition from a patient can be controversial. In general, religions agree that they do not constitute treatment, but basic human requirements. Rev Dunn says that in some particular cases they have been reduced or withdrawn because, as the body begins to close down, it stops processing food and fluids, and forced hydration and nutrition can be very painful.

So the focus is on a humane death and, perhaps, the opportunity to say the last goodbyes. While some families are reluctant to tell a loved one that they are dying, according to Imam Dudhwala, the patient has a right to know, because “it’s their right to prepare for what is coming, whether it’s writing a will, or preparing to meet their Creator.”

Rather than prescriptive advice on medical treatment, faiths aim to offer a framework to approach and make sense of death. Rev Dunn suggests: “making a will, making sure your affairs are in order, making sure your relationships are reconciled, thinking about organ donation.” To make sure that, in the darkest of days, some solace can be taken in knowing that nothing was left undone.

What does “giving 110%” look like for a Chaplain?

I’m involved in an interesting discussion with colleagues regarding the relationship of chaplaincy to our corporate environments. The discussion started off with an article about how folks in business need to “over deliver” in order to move up the corporate ladder. It was put out as to how we as Chaplains can do this and what it might look like.

It drew some pretty heated remarks. Some considered that Chaplains should not even consider advancement in their work. The general idea was “I’m here to please God, not men! If you’re in it for advancement, get another job.” And that’s not much of a paraphrase. Continue reading

What counseling others reveals about yourself

One of the things I learned through reflecting on and getting feedback to pastoral encounters through verbatims is that many times I am counseling myself without knowing it. It’s only in reflection, sometimes long after the fact, that you start to hear yourself talk to yourself. I decided not to go the whole CPE verbatim route, buyt I like this format for reading.

For an example I included part of a dialogue I had with one of my regular patients, an older woman on hospice. She typically has a lot of pain but rarely tells anyone about it. She puts on a pleasant front but typically doesn’t let much out. I decided one day to press her a bit.

C8: So how’s you’re back been? Better or worse or about the same.
P8: No, about the same.
C9: About the same? Just not a good day today.
P9: eh..
C10: eh…
P10: (pause) I’m not complaining too much. Stick around though.
C11: You’re not too much of a complainer though.
P11: Seems like I’m always complaining.
C12: Really? I’ve never seen you as much of a complainer.

Continue reading

Choosing a career in Chaplaincy: 8 steps to take

On one hand, planning for a career as a Chaplain is easy – get board certified and get a job. Well it is that easy, sort of (if you consider about two extra years of career training easy), but getting to the place of “I want to be a Chaplain” is much harder.

Personally, I did not plan on becoming a Chaplain. I had a background in undergraduate and graduate level psychology from a religious college, had interned and worked in heath care settings after that, and while in seminary developed a passion for pastoral care. However Chaplaincy was never in the picture. Now I see that my path led me right to this career. Continue reading

Self care is part of your work

As important as self care is for Chaplains and other caregivers, it’s probably one of the most neglected parts of our job. And self care is part of our job, because if we don’t care for ourselves we will be unable to do our job.

Continue reading